Wednesday, 8 May 2013

Ehlers-Danlos Syndrome

Do you know about Ehlers-Danlos Syndrome? I didn't, but when you discover that someone you know has it, you find out. One of my writing friends at Facebook has it, along with her children and siblings. Find out more at this Facebook page, where she gives information and declares a fund-raising writing marathon.


Jenny Woolf said...

Sounds like a weird and horrible disease, one which I had never heard of. I am off Facebook at present but will probably rejoin quite soon and when I do I will try to remember to visit the page.

Julia Hones said...

Yes, it is rare disease, but I have a distant cousin who has it. The doctors took years to finally diagnose this problem.

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